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Frambu Resource Centre for Rare Disorders

Hospital & Health Care ยท Ski Kommune, Ski Kommune
Website: www.frambu.no

Frambu is a national resource centre for people with rare disorders in Norway. Its mission is to provide leading-edge experti ... se, knowledge and services for more than 120 rare disorders. Frambu gathers, develops and communicates knowledge about rare disorders and disabilities on behalf of individuals, both with and without a rare disorder, their close/ immediate family and the professionals who work with them. The goal is to ensure that children, adolescents and adults with impaired abilities can live a life in harmony with their condition, aspirations and needs. read more

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